Co-Creating Communication Tools for Early Detection in the SANGUINE Project

As part of the SANGUINE project, PredictBy is leading a co-creation process to design communication package mock-ups that support informed decision-making around a newly developed blood test for the early detection of blood cancers. This collaborative effort brings together healthcare professionals, epidemiologists, communication experts, behavioural scientists, technology developers, patients, and patient representatives.

The communication packages aim to provide clear, accessible information to help explain and interpret the test for both healthcare professionals and patients. The materials are being designed to improve understanding, address common barriers, and facilitate appropriate use of the test in screening and early detection contexts.

Following a review of relevant scientific literature, PredictBy, in collaboration with European Cancer Organisation (ECO), conducted several exploratory interviews with patients, patient representatives, clinicians, and developers. These conversations explored information needs and preferences, perceived barriers and enablers for early detection, and effective ways of sharing medical information. Additional input was gathered from behavioural and communication scientists to support the development of evidence-informed materials.

To validate the findings and gather further input, a focus group with patients was held. Insights from this group confirmed earlier observations and added valuable perspectives on how to best structure and present information. The next step in the process involves drafting the content and structure of the communication packages. Another focus group is scheduled for October 2025 to further develop and refine the materials in collaboration with patients.

Once the mock-ups are complete, they will be tested with approximately 2,000 individuals to evaluate how well they support willingness to participate in screening and early detection programmes.

So far, the co-creation process has proven to be a valuable and productive approach. Involving patients, healthcare professionals, and other key stakeholders alongside scientific research ensures the development of communication tools that are relevant, effective, and ready to support the broader aims of the SANGUINE project.